Chronic Illness
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Last week A+ therapist and I were discussing how living with chronic illness requires one to be intentional in ways that get overwhelming at times and take the spontaniety out of life. If I do my entire morning routine of treatments, red light therapy, stretches, brain games, meditation, etc from start to finish at one…
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WTF has become a favorite sentence of mine to say throughout my journey. Sometimes there’s nothing else to say but “What The Fuck.” My current favorite is to say “What in The Actual Fuck.” If you are offended by curse words, I assure you I am done using them in this post. Let’s be honest…
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I don’t know where you all live, but where I live the mosquitoes are out for blood.. literally. There seem to be a lot more of them this year and they seem to all be very hungry. Yes, I have heard the theory that Bill Gates released a bunch of technologically altered mosquitoes in the…
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The above title is meant to be sung to the tune of “Head, Shoulders, Knees and Toes, Knees, and Toes. “It’s the chronic illness version of the song. When you get sick, no one tells you the amount of gear that comes with being sick. It’s not fun, cute, athletic gear that all the Olympic…
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I had one of those moment’s this morning where the only thing I could do was laugh at the ridiculousness of the moment. My occupational therapist has me doing those brain exercise books or websites each day for 10-15 minutes to help challenge my brain and build new neural pathways. Today, I was working on…
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The above number doesn’t have quite the same ring to it as “525,600 minutes”, but it does fit pretty well the RENT tune if you sing it.. I should know as I tried, several times. Today marks 2 years or 1,051,200 minutes since a bright pink line popped up on an at home Covid test…
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Both Post Covid Syndrome and Chronic Fatigue Syndrome are relapsing and remitting disorders meaning the symptoms can come and go. There are days, weeks, etc where my symptoms are running the show and then days, weeks, etc where it feels like I actually have some control over my body. This is by far the hardest…
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A simple, 4 word question I get asked all the time and I wish the answer to this question was as simple. I often don’t know what to say to this question, but I often respond with, “It’s a day by day journey” or “Some things are better, some are worse, some are the same.”…
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In the last 21 months I have received overwhelming support and love. I have also dealt with the occasional comment, opinion, and judgment that have left me scratching my head and wondering “What would make someone say that?” I was looking at cards the other day and it got me thinking about things people have…
